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Friday, July 10, 2009

New phase of life

Okay, it seems like it's been forever since I had a real, live update. Even the one in February doesn't count. So, here's another life update for the morbidly curious.

I've been on Tysabri for 6 months now, and I've had nothing but good experiences with it—medically, that is. Every single month is an adventure in pincushionhood, on the other hand. But what can you do? It's like one of those silly stupid hypothetical half-drunk questions: "would you rather suffer more MS symptoms ... or get poked with needles for hours, one day a month??" I guess I've learned the answer to that one.

Other things in my life have been greatly affected by my choice in medication. For one, it causes birth defects, so I can't decide to try to have kids until after I'm off it—if I was planning on trying anyway—which, shockingly, scarily, and horrifyingly enough, it seems I may be.

My mother has also wanted to be present for my infusions every month. This hasn't always been possible, but when it is, I absolutely hate it. She gets far more upset about bad pokes than I do, behaves embarrassingly (ie, acting out her parade stories as she's telling them to me... in the infusion room), and, most frustratingly of all, answers questions that nurses ask ME.

(Days Later) Whatever. Moving on.

Branden and I celebrated our 2-year anniversary a bit ago, the last weekend of May. It was very relaxing, romantic, and awesome. On the way home from Denver, we got a call from Branden's mom telling him that his brother Aaron had been sending her disturbing text messages about how she was going to lose a son, and other suicide-sounding messages. Now, Aaron had just spent a week or two down in Pagosa with her, attempting to work for her boyfriend's raft service. He had to go back up to Fort Collins for a parole meeting. On his way up there, his motorcycle broke down. So, he missed his meeting and was stranded in Fort Collins with no money and no place to stay. He had a sort-of girlfriend and his (and Branden's) brother Griffin up there, but for one reason and another he couldn't stay with either of them. Cutting out the details and intervening events, we got ahold of Aaron and offered to fix his bike for him if he would bring it down to Boulder and take it to a mechanic's.

The saga of the motorcycle is long and convoluted, but that isn't the important part of the story, so I'm going to condense it down: we got the motorcycle fixed, a couple of days later it caught on fire while he was driving so he parked it somewhere "temporarily." Then he finds out from the person who actually owns the bike that he is going to report it stolen to get out of paying it off, etc. So, the bike is gone and honestly, I'm relieved.

So, come to find out, Aaron's stay with Deb turned out about as well as his entire childhood with Deb... which is to say, not very well. So he decided not to go back to Pagosa. We offered him room on our couch while he found a job and saved up enough money to get his own place. So, he's been living with us since May 31.

A week or two later, Griffin came down and also started sleeping on our floor, looking for a job.

Condensing again: They're both gainfully employed now, saving money to get their own apartment together in the Boulder area. They both feel like they're getting a new start to life and that the situation in Fort Collins was terribly toxic. It seems that Aaron may actually be getting free of the witch. And, all is good in Conley boys land.

Branden and I lived in the Habitat apartment with them until June 23rd, when we got the keys to our new apartment in the Horizons, where I work. However, ON the 23rd, the day we were supposed to start painting and moving, I woke up with a terrible stomach ache. Branden took me to the hospital, and 12 hours later, they took out my appendix. It basically decommissioned me for the ENTIRE MOVE. This would have been great except that, of course, I spent the whole time feeling frustrated and guilty that I wasn't helping more. I'm still not supposed to lift more than 25-30 pounds for another week or so.

But, we got moved (mostly). We have a few more carloads, and our house is quickly filling up (yikes!), but it looks great. We're starting to feel like real grown-ups, and I don't know how I feel about that. But, it does feel nice to not live in chaos anymore. The Habitat apartment is Griffin and Aaron's until August 9th or so, when they have to be moving into their own place so that we can start cleaning and getting it in order for move-out.

We lived at Habitat for 4 years, so this transition is quite a shock for me. I had forgotten how to move, which seems to be mostly okay because I think I've broken some of the more horrible habits I have about it. I'm going to miss it, but the new place really is vastly more awesome, with better amenities and the whole bit.

Also, my whole repertoire of friends is moving up here. Dan and Carlie and Chris Rossi are already here, Joe and Sarah are moving in this weekend, Steph and Ian will be moving here in August (probably), and there may be a slow trickle of other friends, depending on how taken they are with the place when they come to visit. Shad won't be joining us, unfortunately. That actually makes me sad because we used to hang out a lot, now we probably won't anymore.

I'm not a total convert to the area. I hate Safeway (as compared to King Soopers). I don't like suburbia. It feels ungenuine, because it's all apartment complexes or condo communities, and chain restaurants / retail stores. There're no small, long-established local businesses. No cozy nooks. But the price and location is right, for now. We'll see for the long term.

Well, that's all for now peeps. Talk at you later!

Thursday, July 9, 2009

*meanders into the room*

My long-lost best friend from middle school is an amazing blogger, an inspiration to single moms and married childless couples and anyone else in the world in my opinion... and she gave me this award. I'm not sure I deserve it, and I'm even less sure that I have the nerts to say 10 things that are difficult for me to share... 1) because I feel like I share almost anything under the opinion that if I'm not proud of thinking it then I shouldn't be and 2) because if I'm not sticking to that opinion then it's REALLY something I shouldn't be sharing. But I'll give it a shot, eh?


The Honest Scrap award is given by other bloggers who consider a blog’s content or design to be brilliant. The awardees must then post ten honest things about
themselves and pass the award on to other bloggers who fit the bill – in other words, whose blog is brilliant.”




I think honesty is put to the test when you tell people things you’d rather not share. Things that scare you. So here’s 10 painfully honest / potentially disturbing things about me (proceed with caution):

  1. I think I've lost the capability to express myself artistically. I tell people who say this sort of thing to me, "that's ridiculous, just make yourself do it!" But I can sit and stare at a blank page for hours, feeling more and more frustrated and helpless. I don't want to give up but repeatedly trying and failing makes me feel worse than not trying.
  2. I fear, often, that I've made all the wrong decisions in my life. Yes, I'm happy, but I'm not doing all the things I dreamed of doing--or any of them really. I'm too old, and too young.
  3. I really really hate it when people suggest to me that I do something that I was already planning on doing. I don't know why, but it immediately makes me want to refuse.
  4. My sex drive is all but gone. Sixteen, where did you go?
  5. I think I might be a mean person. At least judgemental.
  6. I deeply resent having to work full time to earn insurance for my chronic illness. Seems bass-ackwards to me.
  7. I MS'd out of Grad school without even finishing 1 semester after doing a ton of work and 6 years of planning and longing. I don't think I'll ever go back.
  8. I believe that a few generations after I'm gone, it will be as though I never was.
  9. Most of my friends call me a "badass" or "courageous" or "amazing" because I don't let things stop me. I call that celebrating mediocrity. If I was those things, I'd still be in Grad school, or have something published, or be accomplishing anything at all.
  10. I think I might love my cats more than my (future) kids. This sucks, because they almost certainly have a shorter lifespan. But I can tell them what to do forever, and they can't throw screaming tantrums in grocery stores.


So, while my life is not exactly boring right now, I don't think I have the time to type about it right now. I'll post at a later date, I promise.



Tag, crazy people!



Adventures in Domesticity

Stargazer's Observatory

Tea Party With the Hatter

Burning Tree

K.D. Bryan